So after months and months of being knocked back because seemingly every neurologist in this state has a year-long waiting list, I have finally found a neurologist who specializes in my ludicrously rare and degenerative neuromuscular condition.
I’ve basically been on a downward slide over the last year, I have days where it is almost physically impossible just to type at a keyboard let alone drag myself to uni, and I cannot seem to communicate the scope of how disabling and terrifying my condition is to anyone. About once a month I am ending up in hospital and it needs to end because I can’t fail my degree.
this is the only neurologist in the state, possibly the country who specializes in ion channelopathy diseases and unfortunately she’s private practice, and I don’t have insurance because I’m on disability pension. The initial consult fee alone is hundreds of dollars and the nerve conduction studies to figure out what’s going on cost even more than that.
If anyone could toss a few dollars my way to help with the consult fee I would be so grateful you would not believe.
Please.
I’m kinna at the end of my rope.